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The funeral
As the car came to a halt, the lovely funeral director turned to face us in the back of the car, Jason to the right and I was at the...
emmalindner6
Apr 10, 20244 min read
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Thomas' death - please be warned that this will be a difficult read
A noise awoke me around 2.15am. It was Oliver, who had aroused from his sleep. As my brain registered the noise, I immediately came into...
emmalindner6
Mar 28, 20244 min read
96 views


Final hours
And here we have it, Thomas' final hours with us. We had made a final visit to Helen House the previous day to try to help make him more...
emmalindner6
Mar 27, 20242 min read
61 views


Photographic memories
Today, I wanted to share a post about a photo that holds particular significance, from the time when Thomas was taken off the ventilator,...
emmalindner6
Mar 26, 20243 min read
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Playgroup
Jason had returned to the office the day before and we were starting to settle back into life at home with Lucy, Oliver and Thomas, as a...
emmalindner6
Mar 25, 20243 min read
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Bath time
Thomas is snuggled asleep on our bed at home one Sunday evening. He is 25 days old and we were to start a normal family routine and life...
emmalindner6
Mar 23, 20242 min read
25 views


Finally home
Update on social media, ten years ago today: We made it! The five of us arrived home yesterday afternoon and are now starting to settle...
emmalindner6
Mar 21, 20241 min read
18 views


Cousins
On one of our days at Helen House, my lovely cousins, Jonathan and Becky came all the way from Norfolk with Becky's girls and Jonathan...
emmalindner6
Mar 18, 20242 min read
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Photo shoot
One of the amazing things that Helen House organised for us was a professional family photo shoot. The photographer lived close to the...
emmalindner6
Mar 15, 20242 min read
19 views


Day trip home
Two weeks after leaving home to get Thomas checked for jaundice at the local birthing centre, we finally made it back to home turf. We...
emmalindner6
Mar 14, 20242 min read
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Uncle David
In the afternoon of the day we moved to Helen House, we sat on the sofa and video-called my older brother, David, who lived in Australia,...
emmalindner6
Mar 13, 20243 min read
19 views


Social media update
I can't thank everyone enough for all of the messages, thoughts, prayers and support we have received over the past 10 days, it really...
emmalindner6
Mar 11, 20241 min read
45 views


Transition to Helen House Hospice
The day of our move to Helen House, unbelievably arrived and we were daunted. None of the people who were about to care for us completely...
emmalindner6
Mar 10, 20242 min read
20 views


Outing to the park
Thomas had been taken off the ventilator about 36 hours before now and we had spent agonising hours waiting for him to die. It soon...
emmalindner6
Mar 9, 20242 min read
27 views


Coming off the ventilator
Jason and I had spent the past couple of hours alone with Thomas. Finally holding him in our arms and appreciating our time. He had been...
emmalindner6
Mar 8, 20243 min read
32 views


Subsequent diagnosis of terminal brain damage
"How long do you think Jason might be? Its just the doctor has the results of the scan and wanted to chat through them with you and he...
emmalindner6
Mar 7, 20246 min read
30 views


Life in hospital
From the moment we went into hospital, control was taken out of our hands and we relied so heavily on the expertise and knowledge of the...
emmalindner6
Mar 5, 20242 min read
19 views


A new addition to the family
Jason and I really couldn't believe our luck when I managed to fall pregnant with Thomas. Having struggled with reduced fertility, it had...
emmalindner6
Mar 4, 20244 min read
22 views


Initial diagnosis of brain damage
It was late afternoon on Monday 3 March and Thomas was just five days old. Thomas was now in the Paediatric Intensive Care Unit (PICU) in...
emmalindner6
Mar 3, 20246 min read
34 views


Naming
Christmas 2013, and I was about six months pregnant with our baby, and we knew we were having a boy. My extended family met in a country...
emmalindner6
Mar 2, 20242 min read
21 views
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